I remember that when I was younger, a lady came over to visit my parents. She had a bag. And my feeling when I learned about her bag was that she was weird, different.... scary. Somehow I was scared of her because she was different. I judged this lady so severely and so unidimensionally and came from such extreme ignorance. (I wonder where else I still do such judging. )
And I thought that "it", a bag, is the last thing I would get. It was unfathomable. It's ironic that I ended up with one myself.
And I don't tell people who I just met about the bag. I imagine they don't have a full picture and probably will judge harshly, thinking me to be weird, different.... scary. Anyways, I guess we've come full circle? That is the problem with judging others critically, I guess it all comes back to haunt us. I believe the lesson is to treat others as you wish to be treated. To do so creates the cognitive world you wish to live in. It really does come full circle. I guess that's why a thief will never be able to relax and feel confident that all his posessions are safe.
My grandfather had a bag. He died when I was really little, so I don't remember him. But when my mom would tell me about him and tell me that he had a bag, I remember always thinking "ewwww, that's so gross." Never in a million years did I forsee myself having one. It's hard not to judge sometimes. But we really shouldn't jundge anyone until we've walked a mile in his shoes.
ReplyDeleteSteven,
ReplyDeleteThanks for posting your experiences and thoughts here. My young child has been diagnosed with the basterdly disease )(UC) and I am distraught. I'm exploring all options at the moment and though you didn't do well on LDN, I'm at the very early stages of considering it. I'm an Ontarian as well (Ottawa at the moment, but from Toronto). Did your GP prescribe it to you or did you have to get it online?
Thanks and best wishes with your recovery.
I'm sorry your child and you have to deal with this horrible illness. To have it strike at such a young age is so difficult. The best thing we found to help, other than surgery, was continual enema use and the SCD diet.
ReplyDeleteI had a lot of trouble getting the LDN prescribed and did consider getting it online. I was concerned, however, about the quality of the drug.
Many of our friends are MDs and at the last minute one of them gave me a prescription for LDN. I had it compounded and did notice some benefits (my crp score did drop by 2 points) but it wasn't worth the anxiety that I got. Other people who have used LDN reported to have less anxiety but I guess we are all different. Get your child's CRP score before and after LDN usage to really know if it is of use. Also see if LDN has any contraindications for younger patients. Checking for the drug "Revia" can help guide you.
Here's a study about LDN and Crohn's.
http://www.ncbi.nlm.nih.gov/pubmed/17222320
I wish you the best with this. Sometimes the disease will spontaneously go into remission. If only you can find such luck.
Steven,
ReplyDeleteThanks for taking the time to respond. I know there are several clinical trials on LDN going on in the states right now, one on pediatric crohn's. Some people swear by it but I am concerned because my child is so young. If I do decide to do it, I guess I'll have to work my medical connections too because there's no chance her doctor/GI will consider it. Thanks for the tip about the SCD, she's on it as well as many other supplements etc etc. It's early, we're still hopeful though scared. We've talked to a few people who've had surgery and they are all doing very well and that's one of the things getting us through this. Best wishes.