A second chance - My silly and philosophical look at the cure for Colitis

Countdown thoughts till my Oct 29 2009 surgery where I will be disemboweled to "cure" me of Crohn's/Colitis. My large intestine will be removed.

Memories can be short lived. My hope is that this blog will be a useful tool after surgery, to help me and others remember how challenging things were prior to surgery. To help us appreciate having a "second chance" and keep things in perspective despite a changed body image and new challenges.

Wednesday, March 24, 2010

Kinda sucks having a loving family.

Now I know where that persistent stubborn cough is coming from. And I know why I have a skin ulcer that won't heal.

I learned a new word today: pathergy. "a condition in which the application of a stimulus leaves the organism unduly susceptible to subsequent stimuli of a different kind". In other words, get a surgery and the area that's cut may now develop ulcers, rather than heal nicely.

This IBD or UC really is a rotten disease and total colectomy (ie removal of the colon) is not a cure-all. At least the diabetes is gone..

Not sure what to do at this point. If I didn't have a loving family, whose company I adore... I would find some cool way to off myself. Instead I must endure this crappy set of genes. Thats why it sucks having a loving family.

2 comments:

StevenMarch 24, 2010 at 11:45 PM
Instead of complaining perhaps I should just ask my surgeon to fix my new lung problem the way they fix my other problems. Just cut everything out!
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AnonymousMarch 25, 2010 at 7:57 AM
I emailed you... this won't help your cough, but perhaps it could help the ulcers. Try TriDerma Intense Fast Healing cream. OMG, the stuff is amazing. My incision wound has healed more in the last five days than it has in the last 10 months!! They sell other stuff too. Check it out!
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